Patients and Caregivers are the lifeblood of the Consortium as they determine the direction of all Consortium platforms and projects and identify the needs and gaps within the sickle cell community. All patients and caregivers, who are NOT part of the executive leadership of an existing sickle cell CBO, foundation or group, are invited to partner with the Consortium. Consortium bylaws mandate equal representation by independent patients and caregivers in all projects, platforms and initiatives. Patients and Caregivers who are part of the leadership of existing organizations are encouraged to partner with us as delegates of that organization.