The Sickle Cell Community Consortium is a multi-stakeholder collective comprised of community-based organizations (CBOs), patient and caregiver advocates, community partners and healthcare and research advisers. Collectively these partners form the General Assembly of CBOs, the decision-making body of the Consortium. Organized in a manner similar to the United Nations, each partnered CBO retains their autonomy while joining collectively with other sickle cell stakeholders to apply a model of Collective Impact to identify, prioritize and address needs and gaps within the sickle cell community.